Oral Cancer Educational Links

Government Organizations

FDA Cancer Tools
http://www.fda.gov/cder/cancer
FDA Cancer Tools contains a variety of information related to cancer and approved cancer drug therapies.

The National Cancer Institute
http://www.nci.nih.gov/

NCI Public Inquiries Office
Building 31, Room 10A03
31 Center Drive, MSC 2580
Bethesda, MD 20892-2580
1-800-4-CANCER

National Health Information Society
http://www.health.gov/nhic
Referral Specialist
P.O. Box 1133
Washington, DC 20013-1133
1-800-336-4797
The National Health Information Center (NHIC) is a health information referral service. NHIC puts health professionals and consumers who have health questions in touch with those organizations that are best able to provide answers.

National Coalition for Cancer Survivorship
http://www.canceradvocacy.org/
1010 Wayne Ave. Ste.770
Silver Spring, MD 20910
301-650-9127 or 877- NCCS-YES
NCCS brings together cancer-related research organizations and institutions, cancer support and advocacy groups, and thousands of cancer survivors to work together in addressing the needs of those living with cancer.

SEER Program
http://seer.cancer.gov/
The Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute is the most authoritative source of information on cancer incidence and survival in the United States. Case ascertainment for SEER began on January 1, 1973.
The SEER Program currently collects and publishes cancer incidence and survival data from 11 population-based cancer registries and three supplemental registries covering approximately 14 percent of the US population. The expansion registries increase the coverage to approximately 26 percent. Information on more than 3 million in situ and invasive cancer cases is included in the SEER database, and approximately 170,000 new cases are accessioned each year within the SEER catchment areas. The SEER Registries routinely collect data on patient demographics, primary tumor site, morphology, stage at diagnosis, first course of treatment, and follow-up for vital status. The SEER Program is the only comprehensive source of population-based information in the United States that includes stage of cancer at the time of diagnosis and survival rates within each stage. The mortality data reported by SEER are provided by the National Center for Health Statistics.

Cancer Organizations / Foundations

American Cancer Society
http://www.cancer.org/

Adenoid Cystic Carcinoma Organization International
http://www.orgsites.com/ca/acco/
P.O. Box 15482
San Diego, CA 92175-5482

Adenoid Cystic Carcinoma Organization International (“ACCOI”) is dedicated to furthering research, raising awareness and providing education regarding the rare cancer adenoid cystic carcinoma (“ACC”). ACCOI’s website provides ACC patients and caregivers with information on research, clinical trials, treatment, organizations offering help with medical expenses, and much more. In addition to ACCOI’s website, ACCOI maintains an online support group for ACC patients and caregivers, and an online doctors’ forum where doctors with an interest in ACC can share information on treatment and research. ACCOI also provides a quarterly newsletter in hard copy to various hospitals, as well as at its website.

Society of Clinical Oncology
http://www.asco.org/
1900 Duke Street Suite 200
Alexandria, VA 22314
703-299-0150
The American Society of Clinical Oncology is a nonprofit organization, which represents 15,000 cancer professionals worldwide; the society offers scientific and educational programs and a wide range of other initiatives intended to foster the exchange of information about cancer.

Association of Cancer Online Resources
http://www.acor.org/
173 Duane Street, Suite 3A
New York NY 10013-3334
(212)-226-5525
ACOR offers information and support through its integrated system of online discussion groups.
To further its mission, ACOR creates specific websites and also hosts a growing number of websites, created by:
Patients for patients and caregivers. Many of those websites are considered to be clearly among the best sites for a particular disease or condition.
Cancer Advocacy Organizations, many of which were created directly from the membership of an ACOR mailing list.
Professional Organizations. ACOR volunteers have also created a growing number of disease specific websites.

Association of Oncology Social Work
http://www.aosw.org/
4700 W. Lake Ave.
Glenview, IL 60025-1485
847-375-4721
FAX 877-734-8752
The Association of Oncology Social Work (AOSW) is a non-profit, international organization dedicated to increasing awareness about the social, emotional, educational, and spiritual needs of cancer patients. AOSW’s mission is to advance excellence in the psychosocial care of persons with cancer, their families, and caregivers through: Networking. Education, Advocacy, Research and Resource Development. It supports its members’ commitment to helping and advocating for cancer patients by providing continuing education through conferences and publications; promoting clinical research; and fostering networking to address common issues and concerns. It is involved in numerous collaborative efforts with other national and international oncology organizations to advocate for the support and care of people with cancer.

Cancer Care Inc.
http://www.cancercare.org/
275 7th Ave
New York, NY 10001
1-800-813-HOPE
Since 1944, Cancer Care has been dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones. They have helped over two million people nationwide through toll-free Counseling Lines and teleconference programs, their office-based services, and via the Internet. All services are provided free of charge and are available to people of all ages, with all types of cancer, at any stage of the disease. Their reach, including its cancer awareness initiatives, also extends to family members, caregivers, and professionals, providing vital information and assistance.

The Lance Armstrong Foundation (LAF)
http://www.laf.org/
The Lance Armstrong Foundation (LAF) exists to enhance the quality of life for those living with, through, and beyond cancer. Founded in 1997 by cancer survivor and champion cyclist Lance Armstrong, the LAF seeks to promote the optimal physical, psychological, social recovery and care of cancer survivors and their loved ones. The LAF works to define, refine and improve services for cancer survivors and to facilitate the delivery of those services—with a large dose of hope—to patients, their families, and other loved ones touched by the disease.

People Living With Cancer
http://www.plwc.org/
People Living with Cancer, the patient information website of the American Society of Clinical Oncology (ASCO) provides oncologist-approved information on more than 50 types of cancer and their treatments, clinical trials, coping, and side effects. Additional resources include a Find an Oncologist database, live chats, message boards, a drug database, and links to patient support organizations. The site is designed to help people with cancer make informed health-care decisions.

The National Comprehensive Cancer Network
http://www.nccn.org/
The National Comprehensive Cancer Network (NCCN) is a not for profit, tax-exempt corporation that is an alliance of the world’s leading cancer centers. Established in 1995 to enhance the leadership role of member institutions in the evolving managed care environment, the NCCN seeks to support and strengthen the mission of member institutions in three basic areas:
To provide state-of-the-art cancer care to the greatest number of patients in need;
To advance the state of the art in cancer prevention, screening, diagnosis and treatment through excellence in basic and clinical research;
To enhance the effectiveness and efficiency of cancer care delivery through the ongoing collection, synthesis and analysis of outcomes data.

The NCCN develops programs and products that, in partnerships with managed care companies, employers and unions, offer people greater access to: our leading doctors, superior treatment, programs that continuously improve the effectiveness of treatment, and management that enhances the efficiency of cancer care delivery.

Shared Experience
http://www.sharedexperience.org/
Shared experience is a non-profit, searchable collection of first-hand accounts by cancer patients, their caregivers and loved ones. There are over 1900 experiences posted. Individuals may leave their email addresses and communicate with others through this website. While not specific to oral cancer, there is a wealth of posted stories about dealing with the cancer experience itself.

Vital Options
http://www.vitaloptions.org/
Vital Options® TeleSupport® Cancer Network is a not-for-profit cancer communications, support and advocacy organization dedicated to using communications technology to help people cope with cancer and whose mission is to facilitate a global cancer dialogue. Vital Options is the producer of The Group Room®—the nationally syndicated radio call-in cancer talk show which reaches more than half-a-million radio listeners each Sunday throughout the United States as well as others worldwide who hear the show simulcast live over the Internet (http://www.vitaloptions.org/). This interactive website also provides cancer information and resources, as well as access to past broadcasts of The Group Room and toll free phone numbers for callers in the United States (1-800-GRP-ROOM; 1-800-477-7666) and Europe to enter live on-air discussions.

Cancer Centers
NCI-designated Cancer Centers
http://www3.cancer.gov/cancercenters/centerslist.html

This is the list of National Cancer Institute approved cancer centers in the US, listed by state alphabetically:

MD Anderson Cancer Center
http://www.mdanderson.com/
1515 Holcombe Blvd.
Houston, TX 77030
1-800-392-1611
Consistently rated by independent survey, the number one head and neck cancer facility in the world. For the last 5 years it has juggled for this position with Memorial Sloan Kettering.

The James Cancer Hospital and Richard J. Solove Research Institute
http://www.jamesline.com/
300 West 10th Avenue, Suite 519
Columbus, Ohio, 432101-800-293-5066

Hopkins Kimmel Cancer Center
http://www.hopkinskimmelcancercenter.org/
600 North Wolfe Street
Baltimore, Maryland 21287-8943
410-955-8964

Greenbaum Cancer Center
http://www.umm.edu/cancer/index.html

Head and Neck Center
http://www.umm.edu/cancer/head_neck_resources.html
22 South Greene Street
Baltimore, MD 21201
1-800-492-5538

The Mayo Clinic
http://www.mayo.edu/
200 First St. S.W.
Rochester, MN 55905
507-284-2511

Memorial Sloan-Kettering Cancer Center
http://www.mskcc.org/
1275 York Avenue
New York, NY 10021
212-639-2000
Consistently rated by independent survey, the number one head and neck cancer facility in the world. For the last 5 years it has juggled for this position with MD Anderson Cancer Center.

UCLA Medical Center
http://www.healthcare.ucla.edu/
10833 Le Conte Ave.
Los Angeles 90095
310-825-9111

UCLA’s Jonsson Comprehensive Cancer Center
http://www.cancer.mednet.ucla.edu/
8-684 Factor Building
Box 951781
Los Angeles, CA 90095-1781
310-825-5268
UCLA’s Jonsson Comprehensive Cancer Center (JCCC) has established an international reputation for developing new cancer therapies, providing the best in experimental and traditional treatments, and expertly guiding and training the next generation of medical researchers. Site also has a searchable database.

Other Treatment Facilities and Research Centers:

• Arthur G. James Cancer Hospital and Richard J. Solove Research Institute
• Columbia-Presbyterian Medical Center
• Dana-Farber Cancer Institute
• Duke Comprehensive Cancer Center
• Fred Hutchinson Cancer Research Center
• Fox Chase Cancer Center
• H. Lee Moffitt Cancer Center & Research Institute
• Hospital of the University of Pennsylvania
• Johns Hopkins Oncology Center
• Longwood Skull Base Program
• Mayo Clinic
• Massachusetts General Hospital Cancer Center
• Memorial Sloan-Kettering Cancer Center
• M.D. Anderson Cancer Center
• Mount Sinai Medical Center
• Roswell Park Cancer Institute
• Stanford University Hospital
• The Harvard Head and Neck Oncology Program
• The UCSF Comprehensive Cancer Center
• UCLA Medical Center
• University of Chicago Hospitals
• University of Colorado Health Sciences Center, University of Colorado Hospital
• University of Michigan Comprehensive Cancer Center
• University of Pittsburgh Medical Center
• University of Virginia Health Sciences Center
• University of Washington Medical Center
• Vanderbilt University Medical Center
• Wake Forest University School of Medicine
• Medical Databases

Cancer terminology dictionary http://www.cancer.gov/dictionary/
A comprehensive dictionary of terms which will assist you in understanding terms that your doctors may use in relationship to cancer. Part of the National Cancer Institute website.

NORC “The Best Hospitals” http://www.usnews.com/usnews/health/best-hospitals
Using original survey data and secondary analyses of data from the American Hospital Association and the Centers for Medicare & Medicaid Services, NORC creates an Index of Hospital Quality on an annual basis. This index has three components designed to represent three key aspects of care-structure, process, and outcome.

Hospitals Worldwide http://www.hospitalsworldwide.com/
This is a general listing of hospitals, but does not rank them, and is for finding contact information of those close to a specific location that may be entered by the database user.

Medscape http://www.medscape.com/
Provides the most current medical information and services that provide reliable, digital clinical data and up-to-date information to healthcare professionals and consumers.

CancerNet http://www.cancernet.nci.nih.gov/
CancerNet provides current and accurate cancer information from the National Cancer Institute, the Federal Government’s principal agency for cancer research. You will find a wide range of cancer information, including treatment options, clinical trials, ways to reduce cancer risk, and ways to cope with cancer.

Doctor’s Guide to the Internet http://www.docguide.com/

OncoLink http://www.oncolink.com/
OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge.

Oral Cancer Gene Database http://www.tumor-gene.org/Oral/index.html
Database containing information about genes which are targets for cancer-causing mutations in oral cancers.

Focus On Cancer http://www.focusoncancer.com/
A comprehensive site with information on cancer testing, procedures, medications, and treatment.

The Food and Drug Administration
This web page contains a listing of drugs approved for oncology use, indication for use, and who makes them.
http://www.fda.gov/cder/cancer/approved.htm

Professional Societies

The American Association for Cancer Research
http://www.aacr.org/
American Association for Cancer Research
Public Ledger Building, Suite 826
150 South Independence Mall West
Philadelphia, PA 19106-3483
Phone: (215) 440-9300
Fax: (215) 440-9313
The American Association for Cancer Research (AACR), a scientific society of over 17,000 laboratory and clinical cancer researchers, was founded in 1907 to facilitate communication and dissemination of knowledge among scientists and others dedicated to the cancer problem; to foster research in cancer and related biomedical sciences; to encourage presentation and discussion of new and important observations in the field; to foster public education, science education, and training; and to advance the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world.

American Head and Neck Society
http://www.headandneckcancer.org/
11300 W. Olympic Blvd, Suite 600
Los Angeles, CA 90064
ph: (310) 437-0559 / fax: (310) 437-0585
In 1998, The American Head and Neck Society (AHNS) became the single largest organization in North America for the advancement of research and education in head and neck oncology. The merger of two societies, the American Society for Head and Neck Surgery and the Society of Head and Neck Surgeons, formed the American Head and Neck Society. The society was formed to promote and advance the knowledge of prevention, diagnosis, treatment, and rehabilitation of neoplasms and other diseases of the head and neck.

American Academy of Otolaryngology-Head and Neck Surgery
http://www.entnet.org/
One Prince Street
Alexandria, VA 22314-3357
703-836-4444
The world’s largest society of physicians who treat disorders of the ear, nose, and throat and related structures of the head and neck.
Find an ENT web resource
http://www.entnet.org/ent_otolaryngologist.cfm
The special skills of otolaryngologist ENT’s include diagnosing and managing diseases of the sinuses, larynx (voice box), oral cavity, and upper pharynx (mouth and throat), as well as structures of the neck and face. Otolaryngologists diagnose, treat, and manage specialty-specific disorders as well as many primary care problems in both children and adults. This web resource will allow you to find an ENT otolaryngologist in any geographic area in the US by searching using an area code or geographic location.

American Dental Association
http://www.ada.org/
211 E. Chicago Ave.
Chicago, IL 60611
312-440-2500
The ADA is the professional association of dentists dedicated to serving both the public and the profession of dentistry. The ADA assists in education, research, advocacy and the development of standards in the dental industry.
American Association of Oral and Maxillofacial Surgeons
http://www.aaoms.org/
9700 West Bryn Mawr Avenue
Rosemont, IL 60018-5701
847-678-6200
AAOMS is a professional association of oral and maxillofacial surgeons and is dedicated to promoting the highest quality of patient care and education.

American Society of Clinical Oncology
http://www.asco.org/
1900 Duke Street Suite 200
Alexandria, VA 22314
703-299-0150
The American Society of Clinical Oncology is a nonprofit organization, which represents 15,000 cancer professionals worldwide; the Society offers scientific and educational programs and a wide range of other initiatives intended to foster the exchange of information about cancer.

American Speech-Language-Hearing Association
http://www.asha.org/
10801 Rockville Pike
Rockville, MD 20852
This site has excellent information and resources related to speech and swallowing disorders, both which may affect those who have had surgery for oral cancer. References to therapists are also on this link.

The American Dental Hygienists’ Association
http://www.adha.org/
444 North Michigan Avenue, Suite 3400
Chicago, IL 60611
312-440-8900
The mission of the ADHA is to advance the art and science of dental hygiene by increasing the awareness of, and ensuring access to, quality, cost-effective oral health care. Site has good oral cancer information.

American Association of Cancer Research
http://www.aacr.org/
Public Ledger Building, Suite 826
150 South Independence Mall West
Philadelphia, PA 19106-3483
215-440-9300
The American Association for Cancer Research (AACR), a scientific society of over 15,000 laboratory and clinical cancer researchers, was founded in 1907 to facilitate communication and dissemination of knowledge among scientists and others dedicated to the cancer problem; to foster research in cancer and related biomedical sciences; to encourage presentation and discussion of new and important observations in the field; to foster public education, science education, and training; and to advance the understanding of cancer etiology, prevention, diagnosis, and treatment throughout the world.

American Society for Therapeutic Radiology and Oncology (ASTRO)
http://www.astro.org/patient
12500 Fair Lakes Circle, Suite 375
Fairfax, VA 22032
703-502-1550
1st organization of its kind. These medical professionals, found at hospitals and cancer treatment centers around the world, make up the radiation therapy treatment teams that are critical in the fight against cancer.
Clinical Trials

CancerTrials
http://www.cancer.gov/clinical_trials/
A service of the National Cancer Institute, this site helps link cancer patients to appropriate clinical trials.

Center Watch
http://www.centerwatch.com/
A service listing of clinical trials throughout the United States.

ClinicalTrials.gov
http://www.clinicaltrials.gov/
The U.S. National Institutes of Health, through its National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members and members of the public current information about clinical research studies.
Publications

Medbioworld
http://www.medbioworld.com/

ENT/Otolaryngology Journals
http://www.medbioworld.com/med/journals/oto.html

ENT/Otolaryngology Associations
http://www.medbioworld.com/med/assoc/ent.html
Medbioworld is the largest site for access to medical journals and associations in every field of health and medicine.